For people living with HIV, hepatitis B or hepatitis C

What does family mean to you as a person living with HIV, hepatitis B or hepatitis C?

Researchers at UNSW would like to interview people living with HIV, hepatitis B or hepatitis C to hear their stories about what ‘family life’ means, and how families are involved in the management of these infections in everyday life.

We want to interview people who are happy to talk about how they have involved family members in their health decisions and practices, but we don’t have any assumptions about what families ‘look’ like: they could be biological or chosen, large or small.

We hope to then interview one or two of your family members to hear their stories too,  but it is fine to just take part yourself. Your family members can also volunteer to take part without you doing an interview yourself, if you prefer.

We hope this research can improve understanding of how families experience and manage blood borne infectious diseases, and how services can better meet their needs.

If you are interested and eligible (which we will check by asking you a few questions when you contact us), you will be asked to take part in a confidential interview that will take about 1-2 hours at a time and place of your choosing. If it is more convenient, or you live outside of Sydney, we can record your interview by phone or skype. You will be offered a $40 gift voucher as reimbursement for your time and contribution to the research study.

During the interview we will talk to you about a range of issues relating to your experiences of HIV, hepatitis B or hepatitis C infection, with a focus on everyday family life.

If you would like more information or are interested in being part of the research please contact us.

This study has been approved by the Ethics Review Committee (RPAH Zone) of the Sydney Local Health District, the ACON Ethics Committee, and the Aboriginal Health and Medical Research Council (AH&MRC) Ethics Committee.  Any person with concerns or complaints about the conduct of this study should contact the Executive Officer on 02 9515 6766 and quote protocol number X16-0369.